These pages are no longer being updated. They are here for archival purposes only.  Kay Powell has retired and thanks

everyone for helping The Listen-Up Web help others.

Cochlear Implant Support

 

  • ArizonaCochlearImplant - Anyone who has an interest in talking and sharing their experiences and involvement with the cochlear implant and who live in the state of Arizona.
  • ASIACICIRCLE - a forum for chatting and the exchange of (precious) information on hearing impairment/cochlear implants and their families. Also to co-ordinate organizing and improving services in Asia.
  • British Cochlear Implant Group
  • CI-FromKidz2College - for cochlear implant users, or parents of CI users who were implanted from age 4-5, through college years. Our needs differ from those who were implanted as babies--due to a longer period of deafness, we may not see the almost "overnight" progress with hearing and speaking that is often seen with very young CI users. Regardless of whether your background is oral, signing, or cued speech, residential school or mainstream, all are welcome. Membership is restricted to legitimate CI users and their families, or CI candidates.
  • CI - Listserv. Cochlear Implant Forum. This is a listserv primarily oriented at those people that already have cochlear implants or are in the process of obtaining one. It is for sharing experiences, offering advice, talk of news, sensible even-handed discussion, etc. It is respectfully asked of those who would subscribe to please leave the asl-oral arguments at the door. To subscribe, send a message to: Listserv@yorku.ca In the body of the message type: subscribe ci your name. This is a high traffic list.
  • CI - This is different from the one listed above. This CI mail list is for everyone interested in cochlear implants. Whether you have a CI, are considering getting one, or are just curious about what they are, you're welcome here. Unlike other CI lists, we hope to develop a warm family type list where you can talk about your family and your day, not just about your implant. 
  • CI-CIRCLE - For parents of children with CI's and for parents who are considering CI's for their children. To subscribe, join yahoo groups and then go to http://groups.yahoo.com/group/cicircle/
  • CI-FAMILY - This is a mailing list for families that would like to talk about Cochlear Implants. 
  • CI-FromKidz2College - for cochlear implant users, or parents of CI users who were implanted from age 4-5, through college years. Our needs differ from those who were implanted as babies--due to a longer period of deafness, we may not see the almost "overnight" progress with hearing and speaking that is often seen with very young CI users. Regardless of whether your background is oral, signing, or cued speech, residential school or mainstream, all are welcome. Membership is restricted to legitimate CI users and their families, or CI candidates.
  • CIHear - Here is the place for hearing loss support, to learn about CIs or share your own experiences, good or bad. Questions? Information? Support? New Friends? You just found them all in one place. Please join us for your hearing loss (or gain) needs.
  • CIParents - There is much to learn from each other. Here is the place to do that. It is a place to share and care. Some of the members will be adults who have the implant and want to help you give your child the best possible opportunities to hear. If you are interested in finding out more about CI's for your child - you can find that here as well.
  • CI-PRELINGUALS - This list is geared towards Cochlear Implantees who were born deaf or are prelingually deaf. We also welcome those who are considering a CI for themselves or for their child. This is a place where we can share our experiences and information, and ask questions regarding our CIs. 
  • CITeens-Preteens - This group was created by the parent of a 14 year old ASL user about to be implanted. The purpose of this group is for parents of older children receiving cochlear implants to be able to share their experiences. Our needs differ from those of parents with children who were implanted as babies and toddlers. This group is open to all. Our focus will be on needs of the older deaf child receiving a cochlear implant and their progress post-implant. Sometimes I have felt like I am the only parent on the other CI forums with a teenager receiving an implant but I know there must be others. Please join us!! 
  • Cochlear Implant Association
    5335 Wisconsin Avenue, NW, Suite 440
    Washington, DC 20015-2034
    (202) 895-2781 Voice/TTY
    (202) 895-2782 Fax
    e-mail: pwms.cici@worldnet.att.net
    The Cochlear Implant Association, Inc. [CIAI] promotes the opportunities afforded by the use of cochlear implants through mutual sharing of ideas and personal experiences of the members, functions as a support group for cochlear implant candidates at both the pre-and postoperative stages, enhances community awareness of hearing impairment and promotes a better understanding of cochlear implants. CIAI promotes improved financial support of the implants and supports and encourages the development of local chapters. The Cochlear Implant Association, Inc. maintains a library of publications and audiovisual materials relating to cochlear implants and publishes a quarterly newsletter, Contact, which carries an extensive range of articles on legislation that impacts the hearing impaired, insurance coverage, personal experiences of implant users and many other useful items. The newsletter is free with membership. The Cochlear Implant Association, Inc. hosts a bi-annual convention. Call for further information.
  • Cochlear Implant Club Minnesota
  • Cochlear Implant Users Group UK - This group is for all CI users living in the UK -
    from all 3 brands - any age, also open to any perspective CI users whom are
    thinking or waiting their CI surgeries.
  • FloridaCochlearImplantUsers - Chat with Cochlear Implant Users from all over in Florida. People from all other parts of the country with or without Cochlear Implants are welcome.
  • Hearing Companions - A searchable database of Med-El users. You can search by age, cause of deafness, keywords, etc. for people who have a similar hearing loss or experience.
  • Meningitis Circle - An e-mail support group for parents of children who were deafened by meningitis. Most of the children are cochlear implant users or are being evaluated for a cochlear implant. 
  • National Cochlear Implant Users Association - From the UK
  • Network of Educators of Children with Cochlear Implants (NECCI) - a growing organization primarily composed of educators, audiologists and speech pathologists. They publish an excellent newsletter which is sent to members several times each year.

  • Nucleus Forum - Online Peer Counseling and Support for the Cochlear Implant Community. Offers access to online peer-to-peer counseling and support, via email, for members of the cochlear implant community, including recipients, people who are considering cochlear implant surgery for themselves or a family member, care-givers, professionals and educators, as well as other interested parties. This forum is sponsored by Cochlear Ltd., makers of the Nucleus Cochlear Implant Systems.  However, users of other cochlear implant systems are welcome.

  • ProblemCI - Cochlear Implants have been a miracle to many people but there are some who have had this surgical procedure and have been disappointed by it's results. Here is the place to discuss those difficulties and share with others who know how devastating this can be. If you are investigating an implant and wish to get a well rounded view of the product, this list may be just the place.
  • TBAY_CIAI - The Tampa Bay Suncoast Chapter of Cochlear Implant Association. Although we are a CI support group chapter in Florida, we welcome others to our site to participate in discussions, browse our Links section, or participate in our polls. 
  • San Antonio Cochlear Implant Information 
  • Say What Club's CI Group - To sign up for this one, just send an email to info@saywhatclub.org and tell them you'd like to join the cochlear implant group.
  • SONIC CI Group - Rhode Island. Striving to work together with individuals who are deaf or hard or hearing with the intent to meet common challenges and overcome them by sharing experiences, concerns, and hope for the future.

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