ArizonaCochlearImplant - Anyone who has an interest in talking and
sharing their experiences and involvement with the cochlear implant and
who live in the state of Arizona.
- a forum for chatting and the exchange of (precious) information on
hearing impairment/cochlear implants and their families. Also to
co-ordinate organizing and improving services in Asia.
- British Cochlear Implant Group
CI-FromKidz2College - for cochlear implant
users, or parents of CI users who were implanted from age 4-5, through
college years. Our needs differ from those who were implanted as
babies--due to a longer period of deafness, we may not see the almost
"overnight" progress with hearing and speaking that is often seen with
very young CI users. Regardless of whether your background is oral,
signing, or cued speech, residential school or mainstream, all are
welcome. Membership is restricted to legitimate CI users and their
families, or CI candidates.
- CI - Listserv. Cochlear Implant Forum.
This is a listserv primarily oriented at those people that already have
cochlear implants or are in the process of obtaining one. It is for
sharing experiences, offering advice, talk of news, sensible even-handed
discussion, etc. It is respectfully asked of those who would subscribe to
please leave the asl-oral arguments at the door. To subscribe, send a
message to: Listserv@yorku.ca In
the body of the message type: subscribe ci your name. This is a high
- CI -
This is different from the one listed above. This CI mail list is for
everyone interested in cochlear implants. Whether you have a CI, are
considering getting one, or are just curious about what they are, you're
welcome here. Unlike other CI lists, we hope to develop a warm family type
list where you can talk about your family and your day, not just about
- CI-CIRCLE - For parents of
children with CI's and for parents who are considering CI's for their
children. To subscribe, join yahoo groups and then go to
CI-FAMILY - This is a mailing list for families that would
like to talk about Cochlear Implants.
CI-FromKidz2College - for cochlear implant users, or parents of CI
users who were implanted from age 4-5, through college years. Our needs
differ from those who were implanted as babies--due to a longer period of
deafness, we may not see the almost "overnight" progress with hearing and
speaking that is often seen with very young CI users. Regardless of
whether your background is oral, signing, or cued speech, residential
school or mainstream, all are welcome. Membership is restricted to
legitimate CI users and their families, or CI candidates.
- CIHear -
Here is the place for hearing loss support, to learn about CIs or share
your own experiences, good or bad. Questions? Information? Support? New
Friends? You just found them all in one place. Please join us for your
hearing loss (or gain) needs.
- There is much to learn from each other. Here is the place to do that. It
is a place to share and care. Some of the members will be adults who have
the implant and want to help you give your child the best possible
opportunities to hear. If you are interested in finding out more about
CI's for your child - you can find that here as well.
- This list is geared towards Cochlear Implantees who were born deaf or
are prelingually deaf. We also welcome those who are considering a CI for
themselves or for their child. This is a place where we can share our
experiences and information, and ask questions regarding our CIs.
CITeens-Preteens - This group was created by the parent of a 14
year old ASL user about to be implanted. The purpose of this group is for
parents of older children receiving cochlear implants to be able to share
their experiences. Our needs differ from those of parents with children
who were implanted as babies and toddlers. This group is open to all. Our
focus will be on needs of the older deaf child receiving a cochlear
implant and their progress post-implant. Sometimes I have felt like I am
the only parent on the other CI forums with a teenager receiving an
implant but I know there must be others. Please join us!!
Cochlear Implant Association
- 5335 Wisconsin Avenue, NW, Suite 440
Washington, DC 20015-2034
(202) 895-2781 Voice/TTY
(202) 895-2782 Fax
- e-mail: firstname.lastname@example.org
- The Cochlear Implant Association, Inc. [CIAI] promotes the
opportunities afforded by the use of cochlear implants through mutual
sharing of ideas and personal experiences of the members, functions as
a support group for cochlear implant candidates at both the pre-and
postoperative stages, enhances community awareness of hearing
impairment and promotes a better understanding of cochlear implants.
CIAI promotes improved financial support of the implants and supports
and encourages the development of local chapters. The Cochlear Implant
Association, Inc. maintains a library of publications and audiovisual
materials relating to cochlear implants and publishes a quarterly
newsletter, Contact, which carries an extensive range of articles on
legislation that impacts the hearing impaired, insurance coverage,
personal experiences of implant users and many other useful items. The
newsletter is free with membership. The Cochlear Implant Association,
Inc. hosts a bi-annual convention. Call for further information.
Implant Club Minnesota
- Cochlear Implant
Users Group UK - This group is for all CI users living in the UK -
from all 3 brands - any age, also open to any perspective CI users whom
thinking or waiting their CI surgeries.
FloridaCochlearImplantUsers - Chat with Cochlear Implant Users
from all over in Florida. People from all other parts of the country with
or without Cochlear Implants are welcome.
- Hearing Companions
- A searchable database of Med-El users. You can search by age, cause of
deafness, keywords, etc. for people who have a similar hearing loss or
- Meningitis Circle
- An e-mail support group for parents of children who were deafened by
meningitis. Most of the children are cochlear implant users or are being
evaluated for a cochlear implant.
- National Cochlear Implant
Users Association - From the UK
Educators of Children with Cochlear Implants (NECCI) - a
growing organization primarily composed of educators, audiologists and
speech pathologists. They publish an excellent newsletter which is sent to
members several times each year.
Nucleus Forum -
Online Peer Counseling and Support for the Cochlear Implant Community.
Offers access to online peer-to-peer counseling and support, via email,
for members of the cochlear implant community, including recipients,
people who are considering cochlear implant surgery for themselves or a
family member, care-givers, professionals and educators, as well as other
interested parties. This forum is sponsored by Cochlear Ltd., makers of
the Nucleus Cochlear Implant Systems. However, users of other
cochlear implant systems are welcome.
- Cochlear Implants have been a miracle to many people but there are some
who have had this surgical procedure and have been disappointed by it's
results. Here is the place to discuss those difficulties and share with
others who know how devastating this can be. If you are investigating an
implant and wish to get a well rounded view of the product, this list may
be just the place.
- The Tampa Bay Suncoast Chapter of Cochlear Implant Association. Although
we are a CI support group chapter in Florida, we welcome others to our
site to participate in discussions, browse our Links section, or
participate in our polls.
- San Antonio Cochlear Implant Information
- Say What Club's CI Group - To sign up for
this one, just send an email to
email@example.com and tell them you'd like to join the cochlear
- SONIC CI Group
- Rhode Island. Striving to work together with individuals who are deaf or
hard or hearing with the intent to meet common challenges and overcome
them by sharing experiences, concerns, and hope for the future.